I have had to rest, ideally for one hour in every four, minimally for half an hour every few hours, for the past 12 years. The limitations this imposes on my life is worse than the pain itself - except if I don't lie down, then the pain is intolerable.
I accosted the head of an organisation devoted to psychological wellbeing, to arrange somewhere I could lie down during the breaks of a conference I wanted to attend. This was flatly refused 'for security reasons', although they had couches and blankets available for their work purposes, in the same building. The admin person helped me counter this, and I threatened them with the disability discrimination act. The speed with which they gave in made it all the worse, somehow! And it wasn't such a good conference.